No.... this isn't me.
But I am almost positive I had the exact same look on my face after my visit to the Pediatrican on Tuesday.
Firstly.... advised to get my youngest another hearing test at the Neurosensory Unit, Holy Spirit Hospital..... abnormalities in his ears..... I am starting to feel guilty that I didn't opt for the grommets when he had his tonsil and adenoids removed. My reasoning at the time was... I had absolutely no way of ensuring I could keep his head dry. My son will pour a cup of water over his head if he is hot or sweaty. He submerges in the bath and lives for swimming in Summer.
Secondly.... we are on the Meds.
It's a low dose so I have been forewarned there will be little or no side effects.
It is a trial for one month, while he is still at school, reporting in every week.
I have been told I will probably see no effects at home.... it will all be at school. All his teachers and Aides should she is my child a little "more settled", able to focus for longer and sit at his desk for longer. As he cannot swallow a tablet. I am having to crush his meds into a powder, mix them with butter and disguise it on a drug-laced sandwich. I need to make sure it is enticing enough that he will want to eat it all. It needs to be administered in the morning with food and then at lunch-time with food.
.....a quick note, we started yesterday. I am still trying not to take it personally that I was told what a dream my child was at school.... how different and wonderful he was. Issue.... the second tablet was given too late and I had one hyperactive, monster on my hands last night, who just couldn't go to sleep.
Today was a little different.... the reports are.... completely different from day 1. More unsettled, distracted behaviour. But hey, at least he is asleep by 9pm tonight!
Oh it's going to be a long two weeks..... "tweaking his drugs"..... makes me shudder!
Thirdly..... this one was a complete shocker!
While measuring my boy's height, our specialists noticed how high he was standing on his toes. I had noticed it too.... We tried to get him to put his feet flat down. He leaned over and obviously couldn't stand up straight. His toe walking had been on my mind this year. He becomes very tight in his calf muscles. Swimming used to help but wasn't any more. This was one of the reasons why I decided to start studying Remedial Massage at home. We get no assistance from the Government and Disability services, so paying for a private Physiotherapist wasn't something I could afford this year. Especially when our focus has been on behaviour and speech. My specialists gave me a concern look and basically stated my three options; A referral to a Rehabilitation Physiotherapist at the children's hospital for further assessment..... treatments involving; binding and casting both legs to stretch his Achilles tendon. Botox injections into his calf muscles, freezing them so he cannot get up on his toes but this would also require anaesthetic as it is a painful procedure. Third and final choice... surgery lengthening his Achilles tendon, followed by casting and months of rehabilitation and braces. My son's calf muscles were very close to contracture (permanent shortening of the tendon and muscles). Once in this state my only option would be surgery.
1....2....3 and She's OUT!
So what to do when faced with all this information...... ?
I went home, looked after my children, put them into bed and.....
I drank.... vodka shots.
2 comments:
Look I have been through this with my son. We had the operation that year. He is Autistic too but speaks. The whole thing was awful....just awful and he is back up on his toes today.
Good luck with this decision it's not for the faint-hearted.
It's tough when it all hits you like that. Your son is in my prayers.
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