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Saturday, August 13, 2011

GPS TRACKING......... FOR AUTISTIC CHILDREN.

We are sending our thoughts and prayers tonight to the Morcombe family.
They have endured so much heart-ache over the past 8 years, let us hope they
may finally be at peace. 
http://www.danielmorcombe.com.au/


GPS TRACKING.........  FOR AUTISTIC CHILDREN.

My youngest son has never been a "runner" . I have been lucky enough never to loose him in a Shopping Centre or when we are out. But this week, after an incident at his school where he was lost for around 8-10mins, I have been faced to consider the prospects of what some might consider extreme precautions.

It can really happen to anyone. One minute your child is firmly in your sights or standing by your side.... and the next, they are gone. At school, this is particularly difficult. With so many children all wearing the same uniform bustling along to their classrooms after lunch, it is very easy to loose sight of one of them.  When my youngest first started at his school, he was in a Prep Area. Basically the old preschool area of the school. It has a large fence all the way around the classrooms and includes an outdoor play area. Because the children do wear a compulsory uniform, we made the decision to place a lyric hat band on his school hat. We stuck with the school house colours as there were a few children who require constant monitoring. That way if my son was playing with his peers he could be spotted easily, just by his hat. This has worked beautifully especially with his transition into the bigger playground area of the school.
Now all the staff at my son's school know of him and by name. Before my son began full time schooling I had prepared power point presentations for the staff informing them of his traits and triggers and they were also in-serviced about Autistic children. Our school even went as far as teaching the staff Auslan key sign language, just in case it would be needed. My son struggles to make eye contact with unfamiliar faces, but has peripheral vision. So if he saw someone signing, he would comply, without actually looking at their faces. 
On Wednesday I received a phone call from our Inclusive teacher in charge of Learning Support. She was rather rattled by the days events.  My little boy on the way back from the playground, had gone missing for a short period of time.  He was located in the end.... and he was perfectly safe, but his Teacher Aides and staff at the school, even including the tuck shop lady had all been involved in a frantic search trying to find him when he didn't arrive at his classroom.
The alert went out immediately when they realised he was lining up with his peers out the year one classroom. The first place his aides checked were of course the toilet blocks. But he wasn't there. The teacher on charge had been following him walking up to the classroom with his friends, but in the bustle of the crowds, she had lost sight of him and assumed he continued walking to his room. This was the norm. 
I feel a little sorry for his Aides and the Learning Support teacher. My child has become like a son to them. Panic set in when he wasn't in the junior toilets... the toilets he has always used.  The ladies began running frantically through the school calling out to him, checking car parks and looking under cars. This is the point where I think they all got really scared. One of his Aides described the scene to me, saying the fear was just like loosing her own child and was totally overcome with nausea. Eventually he was found....
sitting in a cubicle of the senior boys toilets. The toilet paper had run out and he was happily just sitting and waiting, babbling to himself, swinging his little legs. One Aide ran into him, helped he out and brought he  back to the classroom. By this time the other staff met her there, and laying eyes on his happy little face, they burst into tears, hugging him in relief. Now my child , totally unaware of all the fuss, gave them all a look of 
" You lot are crazy.... I was just in the loo!....give me a break!"  
Everyone can see the funny side of the situation, needless to say the teachers and Aides needed one giant, stiff drink when 3pm rolled around, but I think it did raise the possibility of; what if ?
"What if my son had been taken ? or had wandered off ?"  "What did I have in place to firstly identify him and secondly, how would we locate him ?"  To be truthful.... I had no action plan, no safety precautions. That in itself is a very scary thought. I guess I felt I had no need for anything like this. I have always been with him, even on excursions. Like I had said earlier, he never ran away from me to the point of me chasing him down or loosing sight of him.  When I eventually got off the phone to his teacher and made my way to school, the realisation of the whole day did hit me.  You hear stories and read about it in the news every day, Autistic children, missing, taken some with a happy ending, some with a fatal ending. It is a very real situation for parents and carers of Autistic children. My son has no skills to seek any kind of help. He would go with a stranger, especially if offered a lolly. The fact that he is non verbal means he wouldn't call out for help, he wouldn't say 
"No !" or resist. He is very compliant with relief teachers, or parents who come into the school to help read with the children. In fact, we have taught him to be like that. So if he was approached by a stranger..... it would result in the worst outcome a parent could imagine.  It gives me goose-bumps just thinking about it!

For the past few days I have been surfing the net in search of information regarding what is available for Autistic and Aspergers children.  Personal safety I.D bracelets, medical tags and temporary tattoos are available here in Australia, and that would certainly contain the information that my child was Autistic, but they do pose a problem for children who have incredibly high sensory needs and could not tolerate to wear a bracelet or a necklace... or even a sticker or tattoo. These of course would only work if a good hearted person located a wandering child anyway. But what if that person didn't have the best intentions?  Those I.D's would be useless.  In the U.S there are many reports and associations that advocate G.P.S tracking for disabled children and the elderly. These devices are more readily available outside of Australia, which isn't really helpful either. However what I did find out is; personal tracking devices can be placed into phones or bags and children can be tracked via an App on your mobile phone.  For an outlay of a few hundred dollars, it offers peace of mind.  The only catch is the size of these devices, and with some companies, a monthly monitoring fee is needed. It works a little bit like a private security system. So these may not be the best answer either, especially for a single parent in my current situation.  I did find a few devices that were around the size of a dog tag or a USB. I considered the option of sewing them into my child's hat band or inside a pocket on his uniform. As long as it couldn't be really felt or wasn't too heavy it would be perfect.... but again trying to buy something like this in Australia, from a US company, posed problems with compatibility.  I also made a few inquiries with a friend who works for the Queensland Police, and they are out there, but I am yet to locate a device that would work. I was actually surprised to see that Autism Queensland and Aspergers Australia didn't offer much information to parents on this topic in general. With an obvious need this is quite disappointing.

Anyway I have included some websites for anyone interested to view. I would also  appreciate hearing from anyone who can help or know of a company who offers support in this particular area.  I think it will come down to finding the right type of personal safety precautions that will be suited to your particular child and their individual needs. 
It is definitely something worth considering though!

Tuesday, August 9, 2011

DEFYING AUTISM FOR A BIG BRILLIANT BIRTHDAY !

DEFYING AUTISM FOR A BIG  BRILLIANT  BIRTHDAY !

There is a saying that goes....

"My child may have Autism......
But Autism does not have my child....."

The best way for me to describe life with Autism and limited verbal communication is;  like looking at your child through opposites sides of a window.  You can see each other.... you can smile and use gestures to express your feelings, but you cannot hear each other. You spend many hours watching each other,  copying each other in hope of a connection, but there is always that frustration, fear and sadness of not being able to understand. Then sometimes.... just sometimes, the window blows open and you connect, a moment where you both say, hear and feel what the other is sharing..... it is literally like a breath of fresh air, a moment in time that leaves you feeling overwhelmed and at peace.

On Sunday, watching my young son at his very first birthday party, I was blessed enough to have that window open.

I stood back and watched as he welcomed each of his 34 party guests, saying "Hello", smiling and waving. With a little prompt, he thanked them for his gift, placing them in the designated present area and walked off smiling and laughing surrounded by friends. I could hardly believe my eyes and in fact, most of the adults in attendance who work with my son, stood by my side astounded at his display.  He was relaxed and happy.
I had stayed up late many nights before his party making visual pictures and books, so I could prompt him of the process of the day. I needed to give him information to remove any confusion of what was to come/ the unknown. The key here was to keep these social stories simple, and they worked beautifully.  He knew the process for greeting guests, organising himself for bowling, what happens after the bowling had finished, when the Birthday cake was coming and what happened during that time. Finally the process of saying thank-you and goodbye, handing out party bags to each child.

Just like clockwork, he followed that step-by-step plan, to a tee!
I was really surprised by what he was actually capable of.

The parents in attendance were also impressed by his communication and manner, the children engaged him as they always do..... but I supposed on this particular day they got to see a little more of that hidden, but beautiful personality, and I got to see my son, free of the Autistic traits that isolate him from his family and friends..... every day. His grandparents even received a very precious gift that day. For the first time in his young life, they got to see their grandson "socialising and playing" with his peers.
It was really a very moving moment for them.

Everyone enjoyed themselves so much. It was a truly wonderful party and has created some beautiful memories for my son. He has been singing Happy Birthday to himself for the past few days, looking at photos from the party and watching video clips as well. He is reading the Birthday book I made him, reliving as such, the happenings of the day.
So is he comprehending ?..... YOU BET!
Another milestone achieved.

By the end of the afternoon, arriving home with his aunty, cousin, grandparents and close family friends.... all of us exhausted from the day.....
my young son sat, surrounded by those who adore him opening his gifts. 
I had decided to film all this for a virtual memory.
But the thing that really stood out for me when I was watching the video back, was the speaking. The words and clarity of meaning that were said while opening those gifts was incredible.  It was definitely a break through moment for him. Everyone was silent just watching and listening when he spoke.... 
What an inspirational little boy.

Now even if I do not hear those words again, and there is a good chance I won't, I have the video to play back to my boy..... to reconnect to those memories.
Who knows.... this could be the one moment I have been praying and longing for..... it has been an incredibly long 7 years, waiting to hear his voice - this could be the start of a little chatter-box!

But you know what..... even if it isn't, I have that moment in time.
I have that beautiful memory of watching my child healthy, relaxed, confident, having fun,  understood, and being one with his peers.....

and that is, as a parent, all of us ever really want for our child.





Sunday, August 7, 2011

JUST BEFORE THE DAWN.....

JUST BEFORE THE DAWN.

I like the quiet of the early morning...just before dawn.
I find it can be a very peaceful time as I often
take the opportunity to reflect on things and centre my thoughts.

Sunrise...Maleny...Sunshine Coast Hinterland.

Today is going to be a very big day..... "the Birthday party".
I am not anxious for my child, but instead find myself reflecting on the past.  

As there is a five year gap between my boys, I have thousands of photos and videos of different stages in their young lives. For my older son, I think, his dad and I were so besotted by his presence, we always had a camera shoved in front of his face, as first time parents do. 
I recall his first birthday party. He was in Year 1 at school...6 years old. It was a "super-hero" costume party.... very appropriate at that time as we could never get him out of dress-up costumes; Spiderman, the Flash, Steve Irwin, Batman, Jedi's .... the list could go on and on. We had only moved into a bigger house in the previous months and seized the opportunity for a home party, inviting his classmates... all 25 of them.  Also at that stage, the parents of the kids were quite social. Most stayed during the party, having a 
bar-be-que afterwards, relaxing with a Vino or two. My older son had the traditional party games, the cake, food, fun, the pinata.... which I remember almost did damage to his dad, being in charge of blind-folded kids holding a baseball bat, swinging frantically in the air. They were good times, funny, nice memories.  I recall the day running smoothly but later, was stuck in my youngest's bedroom for most of night, as he screamed continually with a double ear infection. Even at that stage in his young life, (he would have only been around 7 months of age) he was difficult. This was way before we knew anything. I recall the other mothers and I, all taking turns, trying to settle him...none the wiser.  Still my older lad has some wonderful memories from that day which is all that matters.
Celebrating Birthday's was always an exciting time. I still watch a video of my youngest on his first birthday. The blonde hair, blue eyes looking up at his dad and I. The talking, the emotion the singing and dancing... he was perfect. It was a quiet affair.... just his brother, dad and I..... and it was so special.  You could see him attentive, taking everything in, chatting to us, happy......just like any other normal child. But that was probably the last time I would see my son interacting with us, to that degree. His innocent, inquisitive personality slowly disappeared and celebrations after that, were not much fun!
By the time his next birthday arrived, there was a lot of squealing, head-banging, no eye contact, banging his ears, he didn't like the cakes, candles, singing or presents. He wouldn't touch them and even had a fear of balloons.  His dad and I used to joke about being able to give him a bucket of water and he would be happy.... but we completely missed the signs!   So the birthday parties never happened. Actually the play groups, friendships and socialising never happened for him either. Other kids would come over and he would often sit on his own playing with blocks, cars or trains... in his own world. 
I just thought he was quiet.

When I recall all these memories..... I do feel quiet sad in a way.  Sad that he was "absent" from me and our family. The boys father and I parted ways not long after that... so again Birthdays and Christmas celebrations were hard.  My older son still recalls his 8th birthday as his "nightmare". That was the week he saw his family change, and can recall every detail. But through all that sadness, I can also see how far my two boys have come.  To have my youngest, giving eye contact and loved being touched and cuddled.... I am so incredibly lucky to have that, when so many parents don't. To have my child say "love you" and "Mum" is better than nothing at all.  To have the opportunity to give him his first ever Birthday party and to see the anticipation and excitement in his eyes.... this is over-whelming!  Today is a "monumental" event for our family and even though the day is yet to 
unfold ...I already know it's a success. 


So this morning as I sit and reflect on my thoughts, I give thanks that 
I can look forward to many more wonderful moments in time just like these with my sons 
creating something so precious, I never thought would be possible. 




“Life becomes precious and more special to us when we look for the little everyday miracles and get excited about the privileges of simply being us.”
Tim Hansel