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Friday, October 14, 2011

What does the government really know about Autism.....!

What does the government really know about Autism.....!


This is the latest information that has come through from Minds and Hearts about the current proposed changes to the Medicare rebates to HELP..... 
those on the Autistic Spectrum.
As you may already be aware, due to the new Federal Government budget this year, a change has been made to the allowances possible for Medicare rebates under the Better Outcomes in Mental Health initiative. These changes are due on November 1st. They may affect your plans for therapy at Minds and Hearts over the coming months.
Currently, with the approval of your GP, you may access rebates for up to 18 individual therapy sessions per calendar year per family member with a mental health care plan.
Under the new plans, with the approval of your GP, you may access rebates for up to 10 individual therapy sessions per calendar year per family member with a mental health care plan. As before, there is a need to revisit your GP following the 6th therapy session, should more sessions be required.
As you may also be aware, like many in the helping professions, we are unhappy with this change and have been doing what we can to encourage the government to reinstate the 18 sessions per calendar year. There is no indication that we will be successful, thus we are planning on the change occurring.
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Unfortunately as we had anticipated, from November 1st this year there will be changes to the Medicare rebates under the Better Outcomes in Mental Health initiative. These changes will mean that a maximum of 10 individual sessions and 10 group sessions can be rebated each year. Since my last email to you we have been advised that if an individual has already used his/her Mental Health Care Plan for 10 individual sessions or 10 group sessions this year, then no more sessions will attract rebates beyond 1 November 2011 for this year. Clients are able to apply for 10 further individual sessions and 10 further group sessions for 2012 from January 1st. If these changes will affect your family I encourage you to discuss options for payment for the remaining sessions for this year with your therapist to work out a good plan.
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Please excuse my sarcasm here.... but  wasn't it our Government who proposed billions in helping the Mental Health initiative in Australia this year?  Why call it the Better Outcomes in Mental Health initiative, when clearly you are NOT better off?  Isn't it Australia.... which is fondly referred to as the "lucky country?"... no wonder why so many are forced to migrate aboard to access the services their families deserve.

For my family this means;
My eldest son's monthly appointments with his Psychologist will now be cut, as I have no idea of how to fund the extra appointments while receiving a Disability pension. Also as each FAMILY is only allowed 10 rebated visits per year.... my youngest will now not be entitled to any rebated appointments. He is the one with the greater need, but how is a parent expected to choose between her children who deserves the therapy and who doesn't. Let's not forget each therapy session costs $200.00. I feel for those families who have more than two children on the Autistic Spectrum.
Could it be that our AUSTRALIAN GOVERNMENT has a inability to connect and communicate with the people who it is there to serve?  
Sounds a little like Autism.... a communication defect, doesn't it!
When planning these great schemes I wonder if the so called experts in decision making sit around in plush board rooms, fully understanding the ramifications of their choices. 
"Let's make life just that little bit more difficult for those who suffer from a condition that is through no fault of there own. Let's increase the number of people untreated for Mental Health issues in Australia, as they cannot access the services needed." That is surely a positive step forward.... NOT!
On my part.... it is infuriating that some of us rise up and take a stand encouraging and advocating people to seek help.... reassuring that they will have a better quality of life if they do.... only to be jilted by politics!

This dream of fairness, freedom, acceptance, and rights maybe so.... but....
just not in AUSTRALIA!
Well done Australian Politicians... you have just sentenced those on the Autistic Spectrum
to a lifetime of entrapment.

With these new changes coming into place....one thing is for certain....


Thursday, October 13, 2011

IT'S BETTER TO GIVE THAN TO RECEIVE......

"IT'S BETTER TO GIVE THAN TO RECEIVE......"



Or so the saying goes.......
But can I suggest that in the reality of life that, as noble as that sounds, one cannot survive on the notion of "always giving"..... 100% of the time. 

This thought comes of the back of a challenging week.  The youngest has been shut down for most of the time in the last two weeks and well.... the eldest, with the prospect of leaving his safe-haven of Primary School...about to venture into a new experience of High School next year.... emotions are running high, communication doors are closed and my role, especially this week, has been to continually reach out to try and ease the burdens.  Always giving.... always extending the gesture of help.... always there meeting every need.

It's draining and it's hard. Time is a precious gift. Your energy is not expendable.
It challenges you and your mindset in ways no-one can possibly understand or sympathise with.  You just hope and pray that those around you, care enough to see your wavering demeanour and extend that hand of friendship and support.... to make things a little easier. To either help when you have no time or take the time to appreciate you. Make you feel valued and to fill that gap.
That's what is needed to get you through these difficult stages.... that is what I rely on.  It's a tough gig being a parent.... a responsibility that shouldn't be taken lightly.  By no means am I saying that I am not appreciated by my children.... of course I am.  But they are children.... they know I am always there for them.... not matter what.  
So do I feel guilt, feeling somewhat annoyed that everything is a challenge and that "life" shouldn't be this hard and that just to have a connection and communicate with my kids is always so exhausting ?.... you bet I do.  Parental guilt is a powerful concept. 
I need to reflect. Firstly.... it's not their fault.  Secondly...... this is life and I have to deal with it and get on with it.... no time for self-pity. Thirdly..... it's wrong that the simplest notions are so easily taken for granted.... I need to appreciate what I do get and what glimpses of a connection I do see.  Be positive and keep going.  Over time those challenges will ease and once again, peace will be restored... weather the storm!

Not quite sure how to achieve these thoughts.... maybe I just take a minute to rest and hand my worries over to stronger power.... just for now!
I think the need to take a breath and....not give up as such.... but I must provide an opportunity for relaxation and fun.  Take away the pressures.
The strain to get through, to meet everyone's needs... to constantly initiate communicate with my kids.    Just let things be....
It could just open those doors and take the stress off me to always go the extra mile!
We will see....




Sunday, October 9, 2011

LET"S CELEBRATE AUTISM.... 10,000 REASONS TO SAY THANK-YOU.

LET'S CELEBRATE AUTISM.... 10,000 REASONS TO SAY THANK-YOU.

I have been given lots of good advice over the past 12 months......
Words of wisdom from family and friends.
Sometimes.... I didn't want to hear their words.... but they still supported me.
Sometimes I turned to them for solutions to problems.....
Sometimes I was offered ideas.... and sometimes not. 
I guess I was purely left to trust my own judgement. To believe in myself.

I have a family who loves me and my children.
Good friends who will stand by me when I need them 
and when I don't think I need them.
Their acceptance of me....
Their belief in me....
Their love of me....

It is a gift so precious.

But I think the wisest words I have come across so far in my journey ....

"To live it!..... to aspire....to have strength and faith....
and to always look for the good....in every person and every situation..."

My boys.... my reason for everything....
will follow my footsteps.

I never would have thought that starting this Blog at the beginning of this year 
would ever amount to much.....
So as we approach 10,000 visitors....

I am proud that I have touched so many.....
I appreciate your time.  To celebrate.... as it is a time to celebrate....
my sons and I have put together a small reminder of how wonderful
Autism can be.....

Many thanks and God Bless.

Rachael McGill

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