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Friday, March 18, 2011

And we have CONFIRMATION

LIGHT IT UP BLUE CONFIRMATION


"The people who get on in this world are the people who get up and look for the circumstances they want, and, if they can't find them, make them."
George Bernard Shaw

And there it is... we have confirmation that the AEIOU foundation have organised for Brisbane to participate in "Light It Up Blue."
AEIOU is a privately owned and funded organisation.
The Story Bridge located in Brisbane City will be lighting up Blue for the month of April.

Now if that isn't inspiration for everyone to get behind this cause, I don't know what is....

Go you good things!



Hold onto those blue hats!



Now it's just a rumour.....
But there is a whisper circulating that Brisbane have just confirmed the Story Bridge will be lighting up Blue on the 1st April 2011. 
I have contacted everyone one of my support networks to confirm. Only problem is no-one seems to know definitely yet.
Will update you once I get that "double thumbs up" signal.
Here we go.... hold onto your blue hats!

Thursday, March 17, 2011

Update for "Light Up Blue"

Light It Up Blue Update.



I contacted the Brisbane City Council and our Lord Mayor, Campbell Newman, regarding "Light It Up Blue" and Brisbane's proposed plans. That was during the first week of March. I have received an Automatic Response Message, dated 12/3/2011, which states that somebody will get back to me in 13 days. That date will be the 25/3/2011.  Let's bear in mind....the "Light It Up Blue" Worldwide campaign, begins on April 1st, 2011.


I will let you draw your own conclusions on, Brisbane's intentions...... 

DON"T LET THIS STOP YOU FROM SUPPORTING THE WORLDWIDE AUTISM AWARENESS CAMPAIGN!

My Proposal is the following. Buy a blue light bulb from Big W.  I got one this week for $1.80.  I will be replacing my front door light with the blue bulb for the duration of Autism Awareness month. I am then asking that you take a photo and send it through to this blog.  With your permission, I will post any photos that show support for the "Light It Up Blue" campaign. I will be contacting Autism Queensland and Autism Awareness Australia to inform them of this proposal.  Word of mouth is the key here.... everyone you know, anyone who has a family member that suffers from Autism, schools, childcare centres, anywhere you can think of..... encourage them to buy a $2.00 blue Light Bulb and show support for Autism.
 All I am asking is the replacement of one light bulb. It is totally up to you if you want to get creative and change more lights. To show support.... is your choice, and in what capacity is also your choice.  
You are lucky to have that choice...... Children with Autism DON'T!

If the rest of the world can follow suit.......... why can't we!

Light It Up Blue
                                                                                                                                   

The iconic sails of Sydney Opera House will be lit a brilliant blue on the evening of Friday April 1st as part of the worldwide Light It Up Blue event. Many of the world's most famous buildings will be blue including; the Empire State Building, Toronto's CN Tower, Kingdom Tower in Riyadh and Torre Agbar in Barcelona to name a few. Autism spectrum disorder is the most common developmental disorder in Australia, affecting
 1 in 160 children. No one knows the cause, there is no cure, but there is hope. You can show your support by lighting your own blue light bulb at autismawareness.com.au





What will they get Up To?.... Part 2.

As promised, the second part of my last post... "What Will They Get Up To?"

Just to recap.... RDI (Relations Developmental Intervention) is RDI® is about restoring the guided participation relationship between parent and child in order to promote the development of thinking and relating.Guided participation describes the relationship that is established between parent and child. Personally, Guided participation can be defined as “Apprenticeship in Thinking.” This statement really appealed to me, as a mum, guide & teacher to my son. Another statement that I connected with was; the goal of Guided Participation can be likened to “Transferring Wisdom.” The thought of re-teaching my kids about life is rather exciting and hopeful.
Part of the RDI Education Stage for parents is to; write a Mission Preview. Our Parent Objective for this task was developing and committing to our mission previews.
We all have goals for our children, and with time and perseverance we have the ability to see these goals achieved. Writing goals and missions can be an emotional time. They do give us a 'big picture' view of what we are striving for. A Mission Preview serves as a plan or a guide to achieving what you have targeted as your innermost desires. A Mission adds focus, direction and purpose to your life. It is what motivates you to get out of bed every morning, what helps you stand up and continue moving forward when you stumble, what drives your every decision in life. A Mission is important in every aspect of life, whether it’s a Mission for you, your children, your profession, your business. It is what keeps you straight on your path and what leads you back to it when you get lost. Developing a Mission preview is a thought-proving process that requires you to look within and uncover what your values and hopes for the future are. The purpose of this objective was to develop a Mission Preview of what my family and my child’s life will look like at a future point in time. I had to list things/scenarios/ways on how I would like to see my relationship change or grow, with my son.



My Mission Statement:


Mission Preview: aged 7 years.
10 minutes to 3 o clock, time to go and get the boys.  I leave home and begin the arduous journey to school, waiting in the drive-through area, which seems like a life time but in reality is only 10-15 mins. As I pull into the main drive-way there are still 4-5 cars in front of me. We come to a stop, I glance over and see (L) sitting with a small group of friends, he is smiling and chatting. He glances over at me, recognising the car. He doesn’t jump up, panic or try to run towards me, with total disregard for his own safety. He just gives me a quick smirk and continues chatting to his peers.  I think to myself, he is so independent now. Gone are the days of me having to sit with other children talking for (L).  I look around the waiting area for (B). He was at the other end of the drive through – standing where only the Year 7 children are allowed to be. It’s a socially accepted unsaid rule. He is busy talking to a large group of children, smiling, laughing, girls and boys included. He notices the car, gives a wave and using sign-language, gestures to me for 5 more mins.  I nod “yes.” The cars are not moving anyway. As I slowly begin to move, I pull into the area where children are busy bustling into their parent’s cars. (L) is the first to arrive. He opens the back door of the car. “Hey Mum!”  he says. He then  throws his bag in the back seat and before I even ask him to, is off heading towards the steps where his older brother (B) is socialising. “I’ll get him…..”  I hear (L) say as he runs off into the crowd of children. I observe that my son is not worried about the busy drive-through, he doesn’t seem fazed by crowds or loud noisy children anymore.  Within a minute or so, I see (L) re-emerge, which his older brother trailing behind.  When both boys reach the car, I hear, what some parents would normally complain about – the boys arguing over who is going to sit in the front seat. I think to myself, who would have thought that a “so-called non-verbal child” could argue his point of view…. so well, dynamically and successfully!   Finally (L) jumps into the front seat first…he wins!  Too slow!” I hear him tease.  With a big cheeky smile on his face. He puts his seat-belt on and says…..”Let’s roll Mum…I’ll be late for footy training!”

Mission Preview: aged 12 years.
“Is this ok?”  I hear (L) say as he runs from his room.  He shows me an invitation he has made on his computer for a Year 7 Graduation Party.  Yeah, this is great!” I respond. He has included all the important information; when, when, time, RSVP and contact numbers.  It’ll be awesome Mum… thank-you so much for letting us have the party here.” (L) says.  “That’s ok hon”  I say,  as I continue to prepare dinner. “You’ve worked hard, you deserve to celebrate.”  (L) 
The night of the party arrives.  I watch (L) as he gets himself ready.  His brother is home  too.  I am so proud that he has offered his services to keep everyone under control.  He even brings along a few mates to help out with Music and preparations.  As the boys are busy setting everything up, I feel a sense of joy, relief and pride as I watch (L), (B) and his mates chatting and joking. The door bell rings.  I’ll get it” I hear (L) say as he runs for the front door.  “Hey bud!” I hear, as he greets his friends at the front door.  Come in, we are all out the back!”  
As the night progresses I am sitting amongst a group of parents around our pool at the back of our house.  The landscaping looks amazing!” my friend Sandy says. “Yes I know! The boys and I have worked really hard…..but it is all paying off now. I really couldn’t have done it without them you know.” I say. “Look at him” says Sandy….”who would have thought…..all those years ago….when everything was really tough.”  I smile at her. “I know! It really takes my breath away.” I reply. We both look over and watch as (L) walks through a crowd of kids. Smiling, laughing, joking, stopping to chat to both boys and girls.  His whole persona glows with confidence. He is so popular and socialises so easily with everyone now.  Music is blaring in the background, lights are flashing and the air is filled with excitement and fun. (L) seems so at ease with everything going on around him.  He heads over to where the parents and I are sitting.  Hey Mum, Sandy” he says.  Are you having a good time?”  I ask.  “Yeah mum, thanks, everything is just great!” (L) replies “Congratulations (L)” I hear Sandy say. “Yeah thanks Sas, I can’t wait to start high school. It’s going to be so cool!”  he responds.  You should see their onsite  pool – it’s amazing!  I can’t wait to give it a test run and see if I can cut some time off my P.B’s”  (L) informs us.  It is a great pool!”  I say to Sandy.  Just what he needs to keep up his swimming training, who knows, first regionals, next, maybe state titles!”  I mock.  “You said it Mum!” smiles (L) – “you just watch me!”     Anyway.. gotta keep mingling Mum…you know….places to go.. people to see!”  he says as he heads off bouncing to music, followed by a trail of kids.   He struts over to where his brother is poised, mates on hand.  He places a watchful eye over the crowd.  The brothers don’t say anything to each other – just a secret hand shake as (L) struts past!  A quick glance and a nod.  They don’t need words to understand.  They read each other’s body language so well.  As I watch my sons, I can’t help but think back to all the moments of “silence” I used to get from (L). All the squeals, the isolation and frustration.  He is so at ease with himself, with his friends and where he is in life.  Tears well in my eyes.  Oh no you don’t!  you promised (L)!” I hear (B) say as a supportive hand sits firmly on my shoulder. “Be cool Mum!” (B) reassures me with a hug. “Just look at him…..he is Ok!”

Mission Statement: aged 18 years
Mate, at least pack your bag neatly”  I say as I hand him a pile of freshly ironed clothes.  Mum, it’s fine” (L) responds.  As long as the clothes are clean…that’s all that matters.”     “Have you got everything?” I ask him.  It’s my sons first trip away from home for a whole four weeks.  Mum, it’s sweet!  I've got my clothes, laptop, Ipod, sun glasses, cash, phone and keys.  It’s all good – don’t worry!”  he says.  I’m a mother!” I reply….”Of course I am going to worry…it’s what we do!”  I smile up at him.  He has grown into such a tall young man.  He gives me a hug.  Yeah…..I know” he says.  (L) continues to shove a few things into his bag. I am worried about him, but I am also very confident in his ability to survive on his own.  He is such a sensible kid. I know he will have fun, but I also have faith he knows where to draw the line if trouble arises.  Now if you run out of money…you will call me?” I say. “Mum it’s alright”  (L) responds. “I have been saving for the trip for ages.  That’s why I worked part-time at the pool!”  I hesitate for a minute....   “I know…but if there is an emerg…”      “Emergency…I know "  (L) interrupts me.  Don’t worry Mum I will call if I need your help – you know you can trust me and you know I will call.”  He says smiling.  I look up at him and nod.  I know this is another moment in his life when I need to let him go!   I am so proud, but I also hate these moments! In my heart I know (L) would call if he needed me. We have a good relationship. He is honest and upfront, and I show him the same respect, even if it unsettles me at times.  He also has a great bond with his older brother (B). I know this bond is strong. (B) would be there to help him, where ever he was.  What are you guys planning to do when you arrive?”  I ask.  “Ummmm, don’t know yet” (L) says….”we’ll just play it by ear, see what happens- you know!”   I think to myself – wow no routine, no plan, no more needing to know before we go somewhere, no more anxiety about the unknown – this kid really has changed.  Sounds like fun!” I say in a voice with apprehension…. (L) picks up on my tone straight away! He is so observant and can predict what people are implying… “Mum….” with a look of pity....  How about I call you when we get there and I will make sure I will check in with u, when I can?  Hmmmm….does that make u feel a little better?”  he says.  I think to myself again, is he being condescending towards me? 
When you can…I say…..I know you will be busy.”  I reply Then it’s a plan Mum…when I can!”  he says smirking . “You know Mum, you really need to learn to relax!”   Laughing together….”I know, my son, I know!”  my face alight with pride and love.

When I read back these statements, it makes me feel a little sad. My youngest son turns 7 years old in a few weeks.  He is not any closer to the "Mission Plan" I had written for him, a year ago. He is still not speaking in a fluent manner, although we do have more words.  I guess I was a little too optimistic at the time of writing this mission...... but then again, I have to be optimistic.  That's how we survive. He is doing so many more things than he was a year ago.... and that's a start.


                                                                                                                                           



Monday, March 14, 2011

Two Part Blog: What will they get up to?

“The main problem with teenagers is that they're just like their parents were at their age.”
unknown

I have been reading some enlightening books this weekend about Life, Love, Relationships and Communication. In one of the books, I came across the above quote.  Reflecting on this thought, I took a deep breath and held hope.  That's right... 
My aspirations probably differ from many other parents. I hold onto hope that my children will experience all the facets of adolescence, that I had; all the fun, the socialising, the rebellious outburst, the risk taking, the independence, self discovery and experimentation.  Raising children who are on the Autistic Spectrum, (I am told), will be difficult...extremely difficult. They will develop differently, approaching life and challenges in a contrasting way. Their adolescent years will be quite obscure to that of the norm....  (Well that is, if I accept this notion... and expect nothing more!)
A question that always burns deep is.... Why do we need to settle for less, when raising kids on the spectrum ? 
If "experts" are continually telling us that they do not know how or why Autism is developed or what to expect in the future, how do we as parents know the best way to raise these kids?  I continually hear from people... they can't, you can't, lowering our expectations somewhat.  Wouldn't it be better to allow our kids the opportunities to experience what we had growing up?  Who knows... they could "crash and burn"...... or they just might surprise us and cope, learn and think for themselves. I believe it is our responsibility to provide this.

I was raised in a family of girls. I have one older sister, the majority of my cousins were girls.... I have a female dominated family. My sister, being older by two years, was a huge influence on my "teenage years."  She was the one responsible for introducing me to my first alcoholic drink at age 16, my first cigarette, my first fake I.d. She would let me socialise with her friends, taught me how to drive her car and would pick me up from night clubs in the city at the wee hours of the morning, driving me home. I remember the escape routes out of my bedroom window late at night to meet up with friends, the infamous back-yard "Kylie Street" parties, equipped with 200 drunk teenagers. "Schoolies": 3 years in a row, Southbank Expo, the road trips down to Greenmount Surf Life Saving Club for Beach Parties, concerts at Festival Hall and school dances. Now I have no doubt that I could have stumbled my way through those years, alone, but I think my older and much wiser sister knew that. With or without her I was going to follow in her steps and rebel. It was better to have her there, a little older and wiser, keeping an eye on me. She taught me to take risks, to challenge, to have a sense of responsibility and independence.  It might sound like I am asking for trouble..... but I hope my boys will do these things.  I hope they develop the "type" of thinking and the confidence needed to "experience" adolescence.  Aspergers and Autism, deny children of many things we take for granted; talking, understanding, communicating, learning, making friends, problem solving, seeing another's point of view, recalling past memories when unexpected challenges arise.... I could go on. My sister opened up a new world to me during those years. But I do remember she always there to support me when I needed her. Watching my sons play together, I often wonder if they will have a similar bond ?  Little things like this I cannot assume will naturally just happen. Relationships, even with family members need nurturing. 
So... "What will my boys get up to as they draw closer to Adolescence?" My biggest fears for them are; socialising, friendships, acceptance and confidence. Growing up I had a large circle of friends. They originated from School, Sporting Clubs, Neighbourhood, Church, Siblings friends, Work and Family friends. I can't even begin to imagine what my childhood and teenage years would have been like without those people in my life. They were certainly my partners in crime. 
Society has changed dramatically, and our young people are now much more at risk within our community than in our day. But, I think they can still have fun, bond, socialise, risk-take and all those other things we did as kids, making us who we are. Maybe they just need to be a little smarter, have more life-skills and be a little more street-wise, savvy to what is happening around them. Now again, do not assume that these skills just "happen" for kids on the spectrum.... they don't!  Within the ASD circles, there are many stories about the isolation of adolescence. The bullying, the physical and mental abuse, cyber-bullying, the impact of being different, the ignorance of judgement over education about diversity. Many of these incidents have led to depression, anxiety, drug and alcohol abuse and sometimes even suicide. (now that I come to think of it, not really that different to our time, years before.)  Looking at the bigger perspective, teenagers are always going to rebel. It is normal part of life. Parent's patience will be tested, rules will be broken, consequences for actions will be felt - a necessity when growing up, changing and developing. Kids need to learn how to survive in the "real world" as we all did!  
Raising Boys is going to be a challenge for me no doubt. Basically because I have no idea of how boys think or how they resolve challenges. So when considering boys on the spectrum.... let's just say, I think I will need to refine my patience and "waiting" skills. All I can do is hope. Hope that I have installed some great communication skills early enough to be able to relate to my sons. If I was to be more realistic in my thinking, I know that my boys will be confiding and turning to everyone but me. A sad thought? ....maybe.  Adolescence for girls I am down with, but for boys ?  it's a mystery.  I think I will need to do a lot of questioning and LISTENING to the male figures in my life. Who knows maybe my sons will mature into quite sympathetic and understanding young men, when it comes to relating to their friends and to..... dare I say it......girls. As I am always telling my eldest, the way to a girls heart, is by giving her your time, listening to her and by the words you choose, when talking to her. Kind of a funny philosophy really, when both my sons have communication difficulties (but they can do it.)  Either way I seriously need to learn a lot here.  They will probably end up teaching me a thing or two!
In the next part of this post, I am going to share a personal R.D.I experience involving my youngest. As part of our Educational Stage, we had to write a script, like a play of what life will be like in 5 years, in 10 years and when my son is 18 years old, raising him under the R.D.I  Philosophy of "everybody deserves a second chance".  I would urge every parent to do this, regardless of whether your child has special needs or not. I think it empowers positive thinking. It gives you goals to work towards as a parent. Helps you to appreciate the little things in life and gives hope to a brighter future.  For me.... when this dream is achieved by my youngest son, it will be my sign that I need to let him go and live life.