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Friday, April 20, 2012

Premier Campbell Newman: willing to forgo the federal funding it currently received to assist people with disabilities.


Today my sister and I discussed what in the blazes we were going to do after being told by Disability Queensland that THEIR funding to help it's clients had been cut, so 
therefore despite the fact that my son had been deemed ELIGIBLE..... there was
no therapy or anything else to be eligible for. 
SO I started thinking..... was this a STATE or FEDERAL decision to cut Disability support to Qld?
Then I found this article.... and believe me.... I am still searching for MORE EVIDENCE!
(Just scroll to highlighted area!)

Why do I suddenly have that song...
"The Devil Went down to Georgia..." in my head?

Newman urges competition between states


Queensland Premier Campbell Newman wants the states to compete for business and investment by cutting federal regulation.

The newest premier, Campbell Newman, wants a new way of doing things in the Council of Australian Governments - and he says the commonwealth should get out of the states' way.
On his first trip to Canberra as Queensland premier, Mr Newman said it was a bit rich for Prime Minister Julia Gillard to talk about cutting regulation.
"They seem to measure their progress by how much regulation, how much red tape, how much bureaucracy they bring in," he told journalists in Canberra, pointing to a big pile of paper that made up the carbon tax legislation.
"We're going to cut 18,000 pages of regulation and legislation in the next six years.
"The current COAG agenda and the way it's been working, positively discourages you from doing that."
Mr Newman said the new Queensland position was one of competitive federalism.
This would create healthy competition between the states and encourage business and economic investment, he said.
He rejected suggestions that widening the gap between regulatory systems in different states would actually make it more expensive for businesses to operate across borders.
"We're all for a harmonised approach to various forms of regulation ... but we're also for individual states being able to stand up and deciding that they want to out-compete other states," he said.
As for cutting "green tape", Mr Newman believed discussions in the pre-COAG business forum on Thursday did not go far enough.
"The federal government, frankly, need to delegate the powers of the Environmental Protection and Biodiversity Conservation Act to the states," he said.
He complained that the federal government kept "coming over the top" of the Queensland government to delay major resource and tourism projects.
On the national disability insurance scheme, also on the COAG agenda, Mr Newman said Queensland would not be kicking in any of its own money.
"Queensland is in no position to provide funding towards the NDIS," he said.
"Basically what we would see is the federal government should pay for the entire scheme."
But he believes the scheme is important and said Queensland would be willing to forgo the federal funding it currently received to assist people with disabilities.
Mr Newman's government is taking legal advice on whether it can fight the carbon tax as unconstitutional.  
(Hmmm how is he going to pay for that when he can't afford to contribute to NDIS ?)
He expects to get that in the next few weeks and said he had spoken to at least one other premier about possibly joining together in a High Court challenge.
He also invited Ms Gillard to talk to him about the federal mining tax, which comes into effect in July.
He wanted any super profits generated in Queensland to return to the state.
"If there's a mining project in Queensland that's paying this tax and a dollar of tax is paid, a dollar has got to come back to Queensland ... to infrastructure across the state," he said.
The COAG meeting, at which Ms Gillard will be outnumbered by conservative premiers for the first time, begins on Friday morning.

Thursday, April 19, 2012

AUSTRALIAN GOVERNMENT'S IDEA OF SUPPORTING FAMILIES WITH AUTISM..... BETTER START..... HARDLY - BETTER THEY TRY AGAIN!


AUSTRALIAN GOVERNMENT'S IDEA 
OF SUPPORTING FAMILIES WITH AUTISM.....
BETTER START..... HARDLY - BETTER THEY TRY AGAIN!



To be eligible for Better Start, children must be under six and have a confirmed diagnosis of Down syndrome, cerebral palsy, Fragile X syndrome and moderate or greater vision or hearing impairments, including deafblindness.


Although your son is not eligible for the early intervention funding because of his age, you may be interested in the following support payments and services (you may be aware of some of them already):


Under the HCWA/Better Start Packages, children with ASD or Cerebral Palsy (including those over the age of six) may also be eligible for Medicare items.  A Medicare item for the development of a treatment and management plan is available for children under the age of 13.  Medicare items are also available for up to four allied health diagnostic services and 20 allied health services (in total) for every eligible child.
Specifically, Medicare items are available for:
paediatricians and psychiatrists to diagnose and develop a treatment and management plan for a child aged under 13 years on referral from a general practitioner;
audiologists, occupational therapists, optometrists, orthoptists, physiotherapists, psychologists and speech pathologists to provide up to four services in total per child per lifetime, to collaborate with the paediatrician or psychiatrist on the diagnosis, where required.  These services must be provided before the child’s 13th birthday; and
audiologists, occupational therapists, optometrists, orthoptists, physiotherapists, psychologists and speech pathologists to provide up to 20 early intervention treatment services in total per child per lifetime following a diagnosis of autism/PDD for the child, and consistent with the treatment and management plan prepared by the referring practitioner.  These services must be provided before the child’s 15th birthday, provided an autism/PDD treatment and management plan was in place before the child’s 13th birthday.
For information about the Medicare items refer to the Department of Health and Ageing website at www.mbsonline.gov.au  and www.health.gov.au/mbsprimarycareitems 


NOTE:  This information isn't exactly correct. Psychologist who provide Cognitive Behaviour Therapy are only allowed to offer families (too bad if you have more than 1 ASD child)  6 services per calendar year that you can claim. Also there is the issue od yes... you can claim these Physio.... however it is extremely difficult to find a Paediatric Physiotherapist who specialises in Autism. Those that are, unfortunately are not covered by Medicare Rebates.  Of course then you are also subjected to waiting lists and the limitation of 1x 30 min session per week.  ASD kids need at least exposure to, or therapy, EVERY DAY. Their Autism doesn't occur on specific days of the week. It's for a LIFE TIME !


Chronic Disease Medicare Items
Your son may be eligible for Medicare schemes, such as the Chronic Disease Management items, which include access to a range of allied health services. For further information about Medicare entitlements you should talk to your son’s medical practitioner.
NOTE: Again some important information has been omitted.  5 claimable sessions PER CALENDAR YEAR. If parents use this for Occupational Therapy.... they cannot use it for Physiotherapy or Psychologists and Speech Pathologists. 


Positive Partnerships
The Government is further supporting students with ASD through the HCWA package (under 6 years of age.). Specifically, the Department of Education, Employment, and Workplace Relations is delivering two initiatives under the package which aim to foster positive partnerships between schools and families to improve the educational outcomes of children with an ASD.


The initiatives, which have been named Positive Partnerships: supporting students on the autism spectrum, provide:


professional development for teachers, school leaders and other school staff to build their understanding, skills and expertise in working with children with an ASD; and


workshops and information sessions for parents and carers to assist them to work with their child’s teachers, school leaders and other staff.


For details on the teacher, parent and carer workshops (including dates and locations), as well as other online resources, please visit the Positive Partnerships website at www.autismtraining.com.au.
NOTE:  Yes this is very valid and extremely important.... but it is the same old information regurgitated. This is WHAT YOU NEED TO DO AS PARENTS...wearing them down. There is NO MENTION of ...THIS IS WHAT WE CAN DO TO HELP YOU.


Carer Allowance and Carer Payment
You may be eligible for Commonwealth financial assistance through Carer Payment and Carer Allowance, both of which are available to carers of people with disability or severe medical conditions. Carer Payment is an income and assets-tested income support payment paid at the same rate as other social security pensions to people who, because of the demands of their caring role, are unable to support themselves through substantial paid employment. Carer Allowance is a non-income and assets-tested income supplement available to people who provide daily care and attention in a private home.

NOTE: CARER ALLOWANCE is $114.00 per fortnight.  CARER PAYMENT: similar to Sole Parenting Pension around $500-$600 per fortnight. The Aged Pension in Australia is around $700 per fortnight.  These are basic pay rates. Not enough to live on alone and provide your family with therapy. If you try to work or work part time, you risk loosing your pension.  The NEWSTART allowance looking for work rate is : $529.80 per fortnight.
Further information on these payments is available from Centrelink by calling 13 27 17 or via their website at www.centrelink.gov.au. Further information about support services is also available from Carers Australia on 1800 242 636 or via their website at www.carersaustralia.com.au


MyTime Peer Support Groups
Another service which you may be able to access is the MyTime Peer Support Groups for Parents of Young Children with Disability Program. This program provides peer support groups for parents and carers of children with disability or a chronic medical condition. MyTime Peer Support Groups recognise the importance of focusing on carer needs and giving parents the chance to socialise and share ideas with others who understand the rewards and challenges of the caring role. The groups also provide an opportunity for parents to find out about available community support services and research-based parenting information.


NOTE: Again this is just information.... you still have to source the therapy, go on waiting lists and then PAY for the therapy.


MyTime Peer Support Groups are provided in the community by local organisations. The program is coordinated nationally by the Parenting Research Centre. For more information please visit the MyTime Peer Support Group website www.mytime.net.au or phone 1800 889 997.


Raising Children Network Website
The Raising Children Network (RCN) is an Australian Government funded website providing information, online resources and interactive functions to support parents, families, carers and professionals. The Children with a Disability section of the RCN can be found at http://raisingchildren.net.au/children_with_disabilities/raising_children_with_disabilities.html


NOTE: Just a website that offers you information on how to contract the extremely overpriced, unaffordable, unavailable therapy sources.


State and Territory Services
Please note that Better Start is not intended to replace or reduce disability support services that are provided in each jurisdiction. State and Territory governments are the main providers of specialist disability services, including early intervention services for children with disability. We would encourage you to continue to liaise with Disability and Community Care Services (Queensland Government) on 1800 177 120 about the types of assistance to which your son and your family may be entitled.
I hope this information has been helpful.
Better Start team


Well no.... None of this information has been helpful.... I already knew all of this. Here is a copy of the email I sent to them.....



Good afternoon,
I have an 8 yr old son who is autistic. He received the tail end of the HCWA package funding due to his age.
He now….even though has been deemed eligible from Disability Qld, receives absolutely no help towards therapy or resources.
I have in the past resourced almost all his therapy, early intervention and therapy resources through my Superannuation, as I am on a Carers Disability Pension and I am also a sole parent.  However this is now not an option for me.
I am facing a future of operations for my son due to his toe walking and calcified calf muscles, his is also non verbal. We are currently on the waiting list through the Cerebral Palsy Clinic at the Royal Children’s Hospital as well as recently discovering
that he was eligible for Physiotherapy and Occupational, dated 7 months ago through Disability Qld. However he still has not received any therapy and we were not even told he had been approved, until last Friday when I called to complain.

I have in the past 5 years provided my son with round trampolines, therapy mats and hanging equipment, setting up my garage as a refuge for him to help alleviate some of his Sensory and Autistic Traits. However now that he is older and much bigger
He cannot use any of this equipment. I need to purchase him a swing set and monkey bar attachment from Peppercorn house,
As well as another trampoline: Springfree for safety issues. Do you possible know of any avenues I could try and access funding or Grants to do this?   I need to keep his legs and muscles pliable as he is in pain if I don’t!  It makes me rather bitter to think of
the difference those 7mths of therapy could have made towards his condition.

Do you think they answered any of my questions or provided me with any assistance? 
Even though none of this has helped me..... it may help anyone else who struggles rasing an Autistic child in Australia.  It makes me rather frustrated that our Prime Minster can go on National T.V and "toot her horn" about all the fantastic things her Government is doing for Autism.  I my opinion.... THIS IS NO CLAIM TO ADULATION.... IN FACT IT IS ABSOLUTELY DISGRACEFUL. THEY SHOULD BE ASHAMED OF THEMSELVES. The centre that she visited today would be operating mostly on private fundraising much like that of AEIOU... because the GOVERNMENT cannot even support these centres.


Raeblogs.


Tuesday, April 17, 2012

The Silent Time Bomb .......


“This article interested me as it seems to focus on the mother’s gut-flora.  I wonder how many mothers were tested who had normal if not no gut flora at the time of pregnancy. I know for a fact in my case…. I was on a special diet of no carbohydrates and no sugar diet when I fell pregnant with my youngest….. but was taking the pill.  Interesting opinion isn’t it!” 
Raeblogs

The Silent Time Bomb Now Affecting 1 in 54 Boys in the US
 Posted By Dr. Mercola | April 17 2012   http://articles.mercola.com

The Centres for Disease Control (CDC) has announced that 1 in 88 children in the U.S. are now diagnosed with an autism spectrum disorder (ASD).
The number represents a 23 percent increase in the last two years and 78 percent in the past five years.
But that was just the average—the numbers were much greater for Hispanics (110 percent) and black children (91 percent).
The study, published in the CDC's Morbidity and Mortality Weekly Report, also found that ASDs are nearly five times more common among boys than girls.
Broken down, the numbers equate to 1 in 54 boys with ASDs, and 1 in 252 girls.
The updated estimates are based on data collected in 14 American communities during 2008.
These communities comprised over eight percent of all American 8-year-olds that year.
Interestingly, the number of children with ASDs varied widely from site to site.
The highest prevalence was found in Utah, where a staggering 1 in 47 eight-year-olds were identified with some form of ASD.
New Jersey was also far higher than the average, with 1 in 49. What's really going on here?

WHAT is Causing the Skyrocketing Increase in Autism Spectrum Disorders?

Personally, I don't see how anyone can look at a 78 percent increase of any health problem in a mere five years without snapping to attention. Prior to the CDC's announcement, the Canary Party, a citizens' action group on autism, rightfully predicted that the CDC would downplay the seriousness of these latest statistics.
On its new autism webpage, the CDC state they suspect some of the increase "is due to greater awareness and better identification" among some of the children.
But even taking that possibility into consideration, the statistics are truly shocking. How can one in 88 American children have some form of autistic disorder? In a normal, healthy environment, that just shouldn't happen. And the fact that it IS happening demands our immediate attention. Something is going very wrong, very fast...
While many are focusing their efforts on nailing down one culprit or another—vaccines being the perfect example—I believe taking such a narrow-minded approach can be extremely counterproductive. In my view, what we're seeing here is the culmination of what amounts to a perfect storm...
Research is now clearly showing that environmental factors play a primary role in the epidemic of autism spectrum disorders. But which environmental factors are to blame?
While vaccines have borne the brunt of people's suspicions, there's plenty of evidence suggesting there are multiple factors at play. The factor that prevents us from writing vaccines off as being harmless is the fact that toxic overload appears to be at the core of the problem, and many vaccines do indeed contribute to a child's overall toxic load. So while it's probably unreasonable to blame vaccines alone for the rapid rise in autism, it would be just as unreasonable to ignore their impact, and continue on with the one-fits-all vaccination policy as if everything is a-okay.
The majority of autism cases do appear to result from the activation or "expression," of a number of different genes, along with multiple epigenetic and environmental factors that interact to produce the traits of autism. But science is increasingly showing us just how malleable our genes are—they continuously respond to their environment, meaning, your body and everything you put into and onto it... Furthermore, there's no shortage of evidence that toxins of different sorts can wreak havoc with brain function. Add to this the more recent findings that your gut is profoundly influential for brain health, and a picture of toxic overload combined with inadequate nutrition comes into clear view.

Why We Must Insist on Invoking the Precautionary Principle

If multiple toxic exposures and poor nutrition is to blame, then trying to tease out "the" primary culprit will get us nowhere. I believe we must tackle the issue of ASD with a much wider aim, and that is to reduce ALL toxic exposure and improve nutrition. This tactic includes but is not limited to reducing the vaccine load, especially in the US where children receive the most vaccines of any country on the planet. I believe it's imperative to invoke the precautionary principle with respects to vaccines, and, at the very least, allow people to opt out if they so choose.
While vaccine advocates tend to stress the importance of so-called "herd immunity," saying the vaccine will not work unless the majority is vaccinated, there's a great price to pay by forcing everyone into a one-size-fits-all mold.
Not only are some children at greater risk for vaccine damage than others (which I'll review in a moment), but we also eliminate the ability to evaluate the health risks of vaccinations if no one is allowed to opt out. We NEED to conduct comparison studies to evaluate the health outcomes of vaccinated versus unvaccinated children, yet such studies are not done. An oft-cited reason for that is that it would be unethical to not vaccinate certain children... But this is not really a reasonable excuse today, as many parents want to opt out of one or more vaccines for their children.
Environmental Factors that May Play a Role in Autism
When looking into the possible environmental factors for autism, they are incredibly diverse. The following is just a short list of examples:
·         Electromagnetic fields: Work by Dr. Dietrich Klinghardt suggests there are distinct correlations between a woman's exposure to electromagnetic fields during pregnancy and her child's neurological functioning. He found that if you sleep in strong electromagnetic fields during pregnancy, your child will likely begin to exhibit neurological abnormalities within the first two years of life, such as neurological dysfunction, hyperactivity, and learning disorders.
·         In 2007, this theory received additional support from a study published in the Journal of the Australasian College of Nutritional & Environmental Medicine. It presented the theory that electromagnetic radiation (EMR) from cell phones, cell towers, Wi-Fi devices and other similar wireless technologies may work in conjunction with genetic and environmental factors, becoming an accelerating factor in autism. After more than five years of research on children with autism they found that EMR negatively affects cell membranes, allowing heavy metal toxins, which are associated with autism, to build up.
To learn more about the science of HOW electromagnetic radiation affects and harms your body, please review this previous article featuring Dr. Martin Blank.
·         Mercury toxicity: It is already an established fact that exposure to mercury can cause immune, sensory, neurological, motor, and behavioral dysfunctions -- all similar to traits defining, or associated with autism. Mercury pollution is widespread from the burning of fossil fuels, but the use of thimerosal-containing vaccines and dental amalgams—both of which contain mercury—also cannot be overlooked as major sources of individual exposure to this neurotoxin
·         Vaccines: A 2011 review of the peer-reviewed, published studies on autism (going all the way back to 1943) revealed numerous documented cases of autism caused by encephalitis following vaccination. There are many potential vaccine-related culprits, including the use of toxic adjuvants; the presence of human DNA in vaccines; and the increasing number of vaccines given in a short period of time
·         Phthalates: Research from 2009 discovered that infants who lived in homes with vinyl floors were twice as likely to have autism five years later, compared to those with wood or linoleum flooring. Vinyl floors can emit chemicals called phthalates, which are widely used plastic softeners found in much more than just vinyl flooring. Hairsprays, perfumes, cosmetics, toys, shower curtains, wood finishers, lubricants, certain medical devices and more all contain phthalates. Researchers have suggested the chemicals may contribute to autism by disrupting hormones not only in small children but also in the womb
·         Vitamin D Deficiency: There is also a link between rampant vitamin D deficiency in pregnant women and the proportionate jump in autism, which has been highlighted by Dr. John Cannell. The vitamin D receptor appears in a wide variety of brain tissue early in the fetal development, and activated vitamin D receptors increase nerve growth in your brain
Neurologist Dr. Natasha Campbell-McBride recently shared a common thread that may be linking these and other environmental factors together, namely brain toxicity stemming from gut toxicity, otherwise known as Gut and Psychology Syndrome (GAPS). She cured her own son of autism using an all-natural treatment involving dietary changes and detoxification, and her hypothesis is in my view one of the most elegant.
GAPS: An Elegant Explanation of the Roots of Autism
Dr. Campbell-McBride is convinced that autistic children are born with perfectly normal brains and sensory organs, but that abnormalgut flora, passed on from their mother or father, leads to devastating gut and brain toxicity. In children with Gut and Psychology Syndrome (GAPS), toxicity flowing from their gut throughout their bodies and into their brains, literally clogs the brain with toxicity, preventing it from performing its normal function and processing sensory information. But what leads to such devastatingly abnormal gut flora?
Dr. Campbell discovered that a large percentage of mothers of autistic children were bottle-fed. Then, as they received many courses of antibiotics throughout their childhood, they developed increasingly worse abnormalities in their gut flora, which in turn was passed on to their children. Add to that a diet of processed foods and the use of birth control pills, and the damage to a woman's gut flora deepens even further, and each generation quickly gets worse and worse, unless active remediation is undertaken. According to Dr. Campbell-McBride:
"Many of these modern factors created a whole plethora of young ladies in our modern world who have got quite deeply abnormal gut flora by the time they are ready to have their first child."
Vaccination Policy is Oftentimes the "Straw that Breaks the Camel's Back"
Dr. Campbell-McBride's book Gut and Psychology Syndrome contains an entire chapter outlining what health care professionals need to do to improve the vaccination strategy, because the standard vaccination protocol is bound to damage GAPS babies.
She explains:
"It's a matter of the last straw breaking the camel's back. If the child is damaged enough, the vaccine can provide that last straw. But if it doesn't provide that last straw in a particular child, then it will get the child closer to the breaking point."
Fortunately, it's possible to rather inexpensively identify GAPS within the first weeks of your baby's life, which can help you make better-informed decisions about vaccinations, and about how to proceed to set your child on the path to a healthy life. The entire process for identifying children who would be at risk for developing autism from a vaccine is described in her book, but to sum it up, in her practice she starts out by collecting a complete health history of the parents, and their gut health is assessed. Then, within the first few days of life, the stool of the child can be analyzed to determine the state of her gut flora, followed by a urine test to check for metabolites, which can give you a picture of the state of your child's immune system.
These tests are available in most laboratories around the world and cost a very reasonable amount, about $80-100 per test -- peanuts compared to the incredible expense of treating an autistic child once the damage is done.
In my view it is absolutely VITAL to perform this analysis BEFORE you consider vaccinating your child. If the test results are normal the likelihood of autism after vaccines is dramatically reduced. As Dr. Campbell-McBride states, she has yet to find an autistic child with normal bowel flora. If you find that your baby has abnormal gut micro-flora, or begins to develop symptoms of autism a year or two later, the GAPS program should be started immediately, as the younger the child is when you start the treatment, the better the results. The child should not be given any vaccines until their microflora tests normal. For more information about the GAPS Nutritional Program, including the two types of GAPS diets, and the importance of fermented foods, please review this previous article.
Thoughts on Reversing the Trajectory of Autism Spectrum Disorders
Autism is a complex condition with many contributing factors and it takes a multi-faceted approach to treat it. We're now also beginning to understand it requires a multi-faceted approach to prevent it. Hopefully, more people will begin to take Dr. Campbell-McBride's information to heart and put it to practice so that more children may be spared from the get-go. But even that's not going far enough. We must tackle this problem from all angles, and that also includes:
·         Reduce your and your child's toxic burden: This includes avoiding as many dangerous chemicals as possible, which makes listing the do's and don'ts virtually impossible. There's just too many. As a general rule though, eating whole organic foods will go a long way, as that automatically cuts out processed foods and related chemicals, genetically engineered foods, and artificial sweeteners.
Also be careful with the personal care products you use, as well as your household cleaning products and home building materials and furnishings... Opting for "green" and/or organic alternatives will help reduce many of the toxins most people encounter on a daily basis.
Do whatever you can to establish a toxin-free environment for your whole family, and then establish a detoxification program. Please remember hidden toxins like mould and fluoride. The book, Our Toxic World: A Wake Up Call, by Dr. Doris Rapp is an excellent resource if you're unsure of how or where to start.
·         Lower the EMF burden in your home, especially in your bedrooms.
·         Carefully review the vaccination issue, including the conventional vaccination schedule, and know that in most U.S. states you still have the right to 
opt out of vaccines.

·          Avoid pasteurized milk; it's an absolute imperative to the treatment of autism. Anyone managing this illness without restricting milk is deceiving themselves. This includes all milk products, such as ice cream, yogurt and whey. Even natural flavourings in food must be avoided unless the processor can guarantee that caseinate is not included.
·         Complete elimination of sugar/fructose, juice, soda, French fries and wheat (pasta, bagels, cereal, pretzels, etc) is also highly recommended.
·         Get proper sun exposure. It is my personal belief that vitamin D deficiency in conjunction with damaged gut flora may be two of the most significant contributing factors to autism. Optimizing your vitamin D levels and your gut flora during pregnancy appears to be the most important prevention strategies discovered to date.
References:



· Morbidity and Mortality Weekly Report (MMWR), Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008, March 30, 2012 / 61(SS03);    1-19 




· The Vitamin D Council, Patient friendly summary on autism.